Thursday, September 23, 2010
Toothbrush Rugs: Grocery bags as an art form- my waiting room rug & Creativity is the best medicine
Tuesday, September 14, 2010
The birthday I wasn't supposed to have
About the picture:
Saturday, September 4, 2010
Sunday, July 4, 2010
Word Picture: Psalm 107 - Oh Give Thanks to the Lord for He Is Good
Friday, July 2, 2010
Toothbrush rugs: Cleaning without washing, for large rugs or ones which can't be washed
- Rugs which are too large to wash
- Rugs which are too old or loosely stitched to hold up to a washing machine
- Rugs with leather or vinyl in them, as this beauty.
PS- I do have a new rug video to post!
Monday, June 21, 2010
Storm clouds swallowing up Indianapolis this morning
Thursday, June 17, 2010
My first Fibro photo, and on coming out of the "medical closet" on this- the scariest thing I've ever done!
- fibropathology.blogspot.com - A "mirror" of the one below, created because I wanted a presence on blogger, as many other fibro sufferers blog there.
- fibrofog.blog.com - my "personal journey" blog
- TheArtOfSuffering.blog.com - Displays the art I do as therapy, and encourages others to do likewise
However as I've done with the Word Pictures and toothbrush rugs, I find it worth while to have blogs more narrowly focused so people with an interest in these matters can find worthwhile material without having to sift through the eclectic range of things which interest me.
First, the art
This image is the first one I created for the project.And here is the originalFirst off, I love taking pictures of things in shadow (not just myself) because its visually compelling and has nice symbolism to it.The concept of the shadow is a powerful one.In Jungian pyschology, the shadow is the part of our "self" (id, psychae, what ever) which is hidden, repressed, not integrated into the whole.Scripture talks of this world itself as a shadow, as in 1st Corinthians 13:12, the verse which lent its name to my "Word Pictures" project. A compelling image I did with this verse is here.The top image was created from the original by running it through one of PhotoFiltre's engraving filters.The result is exactly what I was after, for it conveys quite vividly how the pain and related aspects of fibro distort reality, darken and warp the suffer's experience of it.Yet you'll notice the gold bits. No matter how thick the fog or overwhelming the pain, there is yet good to be had and embraced. This is a good practice for anyone, but for someone living with a chronic disease/syndrome, its essential.My 2nd eldest brother would appreciate that black and gold are also the colors of his alma mater- Purdue. Don't think that was in my mind when I created it, but its a fun thought.So this image depicts what is for me the most oppressive and distressing aspect of fibromyalgia- "fibro fog."I can't say that working with photography clears the fog... rather it renders it irrelevant. For some reason, no matter how thick the fog, how heavy the pain, I am always able to tap into my dynamic creativity.I become lost in the project, and in this, I find my greatest relief.Besides showing how I cope with and transcend Fibromyalgia, it is my hope that these blogs have the following effects:
- They encourage others to likewise tap into their core, embrace and express it
- They give expression to the experience of chronic suffering more effectively than words are able to.
Now why it was scary
It was a difficult decision... coming out of the medical closet about this.The two reasons above are very compelling ones. It has always been my way that when life dumps a load of manure, I compost it and grow flowers from it. This has not changed with the onset of fibromyalgia, only the means available to me to do so.I'm not easily scared either...- When I did my chaplaincy residency, I was the resident for the Trauma and E.R., and relished the opportunity to be in situations most people would give anything to have nothing to do with.
- When we lived in Chicago, I embraced the city
- When the opportunity came to preach my father's funeral sermon, I was honored to take the task upon myself.
I'm sure anyone who's ever been in a time of need and found friends fleeing fast as their feet can carry them understands.Here is an artistic project I did with photos with this fellow, whom I miss and for whom I pray ever day.
Monday, June 14, 2010
Sunday, June 13, 2010
Coming �Soon? - Listig [4]2.0
I am so frustrated to not be able to keep up online... I can't even keep up with myself.
But some major things have happened, and I'm going to have to figure out how to talk about them, and I'm going to have to figure out how to resume reading your posts and interacting with you all.
I've never experienced anything like this... this "DDOS" attack which has become a way of life. There has to be a work around, a hack, a crack... and I'll find it.
I miss and love you all, I want to be back here, sharing in your live, your joys, your sorrows, your sometimes lame, sometimes twisted sense of humor...
Rug folk... The rugs have been a lifeline for me, a way to stay sane as I've waited for exams, diagnoses, tests...
I think the last shoe has dropped, that my life is no longer going to be an ongoing jack-in-the-box experience.
This is a good thing. I know I'm not terminal, I know what I'm dealing with. I am both blessed and stressed.
I don't want to roll out Listig 2.0 until I have the bugs worked out though... so till then...
Wednesday, June 9, 2010
Message to Sophia & vague health / life update
Thanks so much for your kind comment! I am glad to have given you information and encouragement.
I am intrigued by the type of meditation you mentioned, but when I clicked on your name, it would not let me leave you a private message.
If you leave a comment to this post, it will make me approve it before its published, so if you want to leave more info for me that way I can read it and NOT publish it if you'd like.
The doctors do have a pretty good idea of why I've been in so much pain, but I'm still not sure how many details I want to be sharing in public.
Suffice to say... in an astonishingly freaky turn of events I'd never believe were it not true of me... I have a syndrome as complex and intractible as my wife's.
I keep working on the rugs in doctors offices, while waiting for scans, etc. I've gotten a plastic bag rug almost half done. It is two tone- yellow and white. I'm using a repeating sequence to make it look like an abstract painting of a daisy or sunflower.
Quite looking forewards to doing some new tutorial videos one of these days, but as long as my world keeps getting turned upside down every week or so...
Thursday, May 27, 2010
Outflanking pain by embracing beauty - as demonstrated and illustrated by VIDEO Humming birds in the morning set to Beethoven's tempest
- Touching, talking, being with Tess
- Lending an ear to a friend or family member
- Engaging and embracing the beauty of the natural world by working with it in the yard.
- Beauty in nature
- Love
- Truth
Sunday, May 23, 2010
Diabetics be warned: More cute baby papillon dog videos
Ambrose in a basket at 4 weeks - almost walking
Ambrose at 3 weeks sort of walking on one of my mother's toothbrush rugs
Ambrose about 2 months wagging his tail and playing in and with a basket
Rushing water - Hoosier Zen - Video taken on our 15th anniversary outing
Monday, May 10, 2010
This is how I outflank pain: Majestic clouds- panoramics, synths, and video
These are the panoramics created by Microsoft's Image Composite Editor.
I also shot video clips tripod mounted, so you can well imagine how stunning they are from these. I'm looking to see if there's an easy way I can make them available to other artists the way that I get creative commons licensed music from freemusicarchive.org and archive.org
- Pain takes away my ability to think or process, but not to be creative
- Without the ability to think, process, even stand up without passing out... there's not a lot else I CAN do
- I often find my best recourse to be not heavy narcs but creative arts. While I'm engaged in them, I can loose my awareness of myself, and thus of the pain. Other than when I had a morphine drip in the hospital, when I'm doing creative things is the closest I have come to being out of pain for the last 6 months... .
As for outflanking pain...
Sunday, May 9, 2010
Monday, May 3, 2010
Mother's Day gift/card pink tulip photos uploading - Special FX by "Image Analyzer"
Make your own personalized mother's day card! Use my mother/daughter pink tulip word pictures!
Tuesday, April 27, 2010
Today's art / puppy therapy
You can read about the video on Youtube.
Saturday, April 24, 2010
BEST free software to batch extract stills from video: SuperC - also good for conversion, audio extraction, etc.
Friday, April 23, 2010
Attention spam commentators... my blood work shows abnormally high testosterone levels, so I have no need of your enhancement products
I just don't have the resources to weed through a lot of people who have an untoward interest in my personal life... which is matched only by their ignorance of my preferences and prowess. ;>
I'd also like to be able to respond to people who stop by and leave well wishes etc., and since right now my brain is about as sharp as a butter knife, I need this to be as easy for me as possible.
Saturday, April 17, 2010
Tulip 3d! My first 3d photosynth!
Ms ICE will generate panoramas you can use in Photosynth, but to get a 3d virtual world, you need to work directly with photosynth and take a whole cloud of overlapping photos.
Friday, April 16, 2010
Stunningly beautiful hillside at Fort Harrison St. Park - My first real ICE pan experiments
But what's REALLY cool is MS Photosynth, which lets you play with them 3d
Sunday, April 11, 2010
"So how do you keep the toothbrushes all-together?" The history of the name of the craft and a fun anecdote
The "toothbrush" in toothbrush rugs!
From Toothbrush Rugs - Loving them, making them, discussing them |
From Toothbrush Rugs - Loving them, making them, discussing them |
- so is there ever a time when you use a toothbrush? I wonder why they call it a toothbrush rug?
- Each of them had a fist full of toothbrushes
Saturday, April 10, 2010
Toothbrush Rugs- Starting one using a half hitch stitch, video tutorial remixed
Doc's still have no idea what's going on, I don't have nearly enough meds, and the ones I have don't do much... so I've been trying to find ways to get engrossed in the creative arts... and that's working as well as anything.
Monday, April 5, 2010
Christ broke free of Hell on Easter - I got sucked back into it (physically)
I can barely get my fingers to type, and I'm relying on my touch typing skills because everything I see is blurred... its as if either the throbbing of blood in my body or the oscillation of the electronics- though supposedly both at frequencies we're not able to perceive- is affecting my vision.
Friday, April 2, 2010
So what's wrong with me? Ah, isn't that the trillion dollar question. Many minds have exploded trying to figure me out!
OK, so I've been back among the living for about a week now. Its nice... basically what happened folks is that about 10 days into December, my pain level reached the point where it shut down the higher processing of my brain. I was either feeling every single bit of the pain without any abatement, or I was incredibly tripped out.And in the mean time, my life has pretty much been taken over by going for scans, going for bloodwork, repeating the scans, repeating the bloodwork... early on I made a quip that by the time this is all over I'd be seen by every specialist except an OB/GYN. Well, that's indeed how it's played out. Safer than ever on the OB/GYN front- the ONLY abnormality they have found is significantly elevated testosterone... so much so that they gave me the third degree about whether I'd been shooting up steroids and androgens!
- I could always trust that if I used good sense and good body mechanics, my body would go along with any plans I had for it.
- I could always count on being able keep my focus on something other than pain when ever needed.
- I could always count on my innate sense of balance, time, and space and my cat like reflexes to keep me physically safe.
Tuesday, March 30, 2010
BOTANIST- is there a botanist in the house? I need to know what kind of chestnut tree this is
Monday, March 29, 2010
The obligatory spring posting of "Poisoning Pigeons in the Park" / Mayan Apocalypse Cord
Here's another BRILLIANT song from "Unicorn Frolic" artist Greg Landgraf
Mayan Apocalypse Cord
This is a great video of the old demento classic
Cadejo : Noun - Legendary Central American cow sized Goat - Dogs
From the wiki:
The cadejo (IPA pronunication /ka.�e.xo/) is a character from Belizean, Salvadoran, Nicaraguan,Costa Rican, Honduran, Guatemalan andsouthern Mexican folklore. There is a good, white cadejo and an evil, black cadejo. Both are spirits that appear at night to travellers: the white to protect them from harm during their journey, the black (sometimes an incarnation of the devil), to kill them. They usually appear in the form of a large (up to the size of a cow), shaggy dog with burning red eyes and a goat's hooves, although in some areas they have morebull-like characteristics. According to the stories, many have tried to kill the black cadejo but have failed and perished. Also it is said that if a cadejo is killed, it will smell terrible for several days, and then its body will disappear. Some Guatemalan folklore also tells of a cadejo that guards drunks against anyone who tries to rob or hurt them. When the cadejo is near, it is said to bring about a strong goat-like smell. Most people say never to turn your back to the creature because otherwise you will go crazy.
In popular etymology, the name cadejo is thought to have derived from the Spanish word "cadena", meaning "chain"; the cadejo is at times represented as dragging a chain behind him. There is a fairly large member of the weasel family, the tayra, which in common speech is called a cadejo and is cited as a possible source of the legend.
See wiki article for the rest
Image from: http://trianacartoon.blogspot.com/2009/07/el-cadejo-version-triana.html
Tuesday, March 23, 2010
On suffering and art: A dispatch from the other side of the looking glass
Here is what I have observed however: While I've lost a great deal of my cognitive abilities and faculties, my creativity has stayed with me, and often provides the only real relief from the onslaught.
I can't speak for any other creative person who is similarly suffering, but for my part, pain has not made me more creative, it has merely taken away my ability to do much else.
Every day I go for a nature walk with Tess (which is a wonderful thing, no small miracle, and the answer to years of prayers) and take pictures or video. The only extent to which pain impairs this is that since I'm often dizzy from it, I can't bend or lie down easily or safely, nor go scrambling around creek banks or rocky outcroppings to get just the right point of view for my photo.
I have taken GIGABYTES of photos and hours of video while this has been going on. The photo in this blog is just one of over a dozen I took this morning of chestnut buds along one of our creeks, and I've been documenting the bud's progress since they first appeared. The place is a very special one for me and Tess... its where a little creek joins a larger one. We spend a lot of time together there.
I rarely have the presence of mind to organize these pix & vid , much less post them... that's more analytical than creative... that has been significantly compromised.
For me, pain has been like an acid bath... its burned away anything not vital or essential. A group I don't necessarily endorse has collected a wide array of sacred texts which speak to this.
I think of this passage so much because most of the ways I experience the pain is that of some sort of fire... be it plasma, lava, matter and antimatter combining, etc.3Blessed be the God and Father of our Lord Jesus Christ, who according to His great mercy has caused us to be born again to a living hope through the resurrection of Jesus Christ from the dead,
4to obtain an inheritance which is imperishable and undefiled and will not fade away, reserved in heaven for you,
5who are protected by the power of God through faith for a salvation ready to be revealed in the last time.
6In this you greatly rejoice, even though now for a little while, if necessary, you have been distressed by various trials,
7so that the proof of your faith, being more precious than gold which is perishable, even though tested by fire, may be found to result in praise and glory and honor at the revelation of Jesus Christ;
8and though you have not seen Him, you love Him, and though you do not see Him now, but believe in Him, you greatly rejoice with joy inexpressible and full of glory,
9obtaining as the outcome of your faith the salvation of your souls. (NASB)
1Co 10: 13 No temptation has overtaken you that is not common to man. God is faithful, andhe will not let you be tempted beyond your ability, but with the temptation he will also provide the way of escape, that you may be able to endure it.(ESV)2Co 12:7 So to keep me from becoming conceited because of the surpassing greatness of the revelations,a thorn was given me in the flesh, a messenger of Satan to harass me, to keep me from becoming conceited. 8 Three times I pleaded with the Lord about this, that it should leave me. 9 But he said to me, "My grace is sufficient for you, for my power is made perfect in weakness."Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me. 10 For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities. Forwhen I am weak, then I am strong.(ESV)
The wry remark made being "Would that God did not esteem me so highly as to count me worthy and able to bear the blessings of such hardship"
Monday, March 22, 2010
The few details we know, and why I'm still not much online - A diagnosis without etiology, etc.
- Four months
- Hours spent in every known scanning device
- Litres of blood and urine drawn and tested